Claudia Molenaar

My Progress

I'm 100km this month to leave MS behind

My Progress

64.99km

My Target

100km

Support my challenge to leave MS behind!

In February 2021 I presented to a Dr with numbness from my collarbone down my entire left side. I was swiftly admitted to the ED at John Hunter Hospital and began the first 12 hours of my 4 day journey of being a human pin cushion. Blood tests, angios, CT scans and more blood tests didn't explain anything. My strength face, speech, balance, test results were all overwhelmingly normal. After being admitted to the Acute Stroke and Neurology ward, 3 MRIs, a lumbar puncture, and 13 more vials of blood, I was diagnosed with MS. While in hospital I undertook a 3 day course of high dose IV steroids to reduce the inflammation on my spinal legion, which will hopefully bring the feeling back to my body (check out the updates for how that's going) 

Anyway, what can I do about it other than my ongoing treatment? What's gonna help people who have this disease who are worse off than me? I’m taking part in The May 50K challenge and will be leaving my limits behind to raise funds for life-changing research into multiple sclerosis!

Sadly, MS is commonly diagnosed in the prime of life between just 20 - 40 years old. I need your help to leave MS where it belongs, behind us. Research is the key to changing the future of MS and I’ve accepted The May 50K challenge to change lives.

Please make a donation to support my challenge.

My Updates

MRI #5

5 MRIs in 2 months. Tell ya what, I'm sick of that tube. 

In great news though, my hand weakness is caused by my existing spinal lesion being inflamed rather than a new one. So, tomorrow I start another course of high dose steroids to get that bad boy under control. I would like to be able to do up my own button on my jeans in the pub bathroom instead of needing to ask a drunk girl to do it for me (true story 😂)

Take my strong hand 😂

An update - over the last few days I've developed some weakness in my right hand. So things like texting, doing up buttons, typing, using chopsticks, and just general every day tasks are kinda tricky. This is a bit freakier than the last symptoms because it's affecting my every day life - like, the numbness wasn't pleasant, but it didn't stop me from doing anything.

I'm waiting for a call from my specialist to see what happens next, but as always staying positive. I mean, if someone can learn to walk all over again after they've had an accident, if someone can learn to talk again after they've had a stroke, SURELY I will be able to use chopsticks again one day 😂

Freedom!

Hey gang,

In excellent news I was released from hospital yesterday (Fri 26/02). Other than headaches whenever I sit or stand for too long (leftover from the lumbar puncture methinks) I feel pretty good ❤️

My numbness has resolved in my left arm, the left side of my ribcage feels bruised, almost like it's been in a high impact car accident, from the hip down my left leg is still lacking sensation...but all in all progress is improvement!

If you know me well, you'd know my favourite place in the world is the pub, so some of my great friends and I had a celebratory freedom drink last night, but that headache made sure I called it early 😂

From here on I'll have an appointment with my specialist in a few weeks and we'll pick an ongoing treatment option. 

I'll keep y'all in the loop ❤️

Thank you to my Sponsors

$1,000

Anonymous

$157.50

Natalie Abshagen

From Aunty Paula and Nat

$105

Ben & Katey

$105

Alida Bozzetto

$67.20

Jackie Kendrigan

Go for gold my girl! You’re an inspiration to us all. Always resilient, always strong and always your kind, selfless & spirited soul. All my love xo

$67.20

Todd Hendry

Kick this. Good luck.

$67.20

Elyse Gunner

Sending you so much love, beautiful lady! ❤️✨

$52.50

Claire Sinclair

Sending you love and strength, your going to smash it x

$52.50

Anna Nagy

You GO GIRL ❤

$52.50

Janice Hicks

Love you HG

$52.50

Raquel Martinez

Hey Claudia, long time ago I really liked you, I still do!! Good job. I wish you all the best.

$37.80

Michelle Nickelson

You can do this Claudia ! Xxx

$37.80

Katharine A Potter

$37.80

Treena

Enjoy your running holiday :)

$37.80

Sophie Kay

From Soph and Tegs xx

$37.80

Brett Campany

Get it done!! Stay strong, we got your back!

$37.80

Claudia Molenaar

$37.80

Mikayla

💕💕💕💕

$36

Nicole Bowden

You’re one strong and fierce woman. We’re behind you every step of the way gorgeous ❤️

$26.25

Khadine

Your are remarkable, an inspiration and nothing short of amazing. You go girl!

$26.25

Kel

You are inspirational! I was saddened to read how much you have been through - I have a deep admiration for how quickly you have launched into helping to find a cure. You are amazing.

$20

Lachlan B

❤️💪💯

$10.50

Jacinta Hatzipaulou

$10.50

Jessica Cox

$10

Shirin Molenaar

I was shocked to hear this Claudia! So brave of you to do this. You are so strong and you can do this!

$10

Lorcan Redmond

$5.25

Reuben Swain

Subscribe to MS Research Australia newsletter