Support my challenge to leave MS behind!
Hey team! As a few of you know last year I was diagnosed with MS which was a bit of a shock to say the least. I went to the GP with an itch on my forehead that wouldn’t go away and ended up in an MRI and a few days later received the life changing news that I have a degenerative chronic illness.
Coming to terms with this has been a very scary roller coaster ride. Physically I got quite bad, I lost the use of my hands and at one stage a good 50% of my body was numb and I ended up in hospital. The physical symptoms are awful but the mental side, not knowing what’s around the corner or if I’ll be able to be the active, hands-on Mum that my beautiful little boy deserves - that’s by far the worst part.
Getting into treatment for something like this is a long process but I started on a drug a couple of months ago and I can now say I feel 100% myself again, something I wish I could tell myself on the day of my diagnosis when it felt like the world would never be the sunny place it once was again. It’s the best feeling in the world and I count myself so damn lucky to be living in Australia in 2021 and having access to the best medicine and a seriously amazing Neurologist. 20 years ago there wasn’t a single treatment for MS and now there are 14! And we’re here because I’m sure a lot of you partook in things like the MS Readathon at school - I used to LOVE it! How cute that little Lu was helping future Lu. So I’m doing the #May50k to help raise money and hope for future generations of women and men who get this absolutely devastating news in the prime of their lives. And with any luck there will be a cure in my lifetime! Word on the street is we are close to a breakthrough! ANY donation big or small is huge and would mean the world. I’ll put the link in my profile.
I have found that hope is the thing that gets you through hard days and that is what the great organisation that is Kiss Goodbye To MS has provided me with. They have told me that, with the right funding, we are within a decade of a having solution to this disease, including being able to reverse the damage that is has done. They work directly with the world class researchers who are literally saving my life. They’ve connected me with other women who have had the disease for years and are thriving thanks to successful treatments brought about by these researchers’ hard work. Nothing gives me more hope than that and that, it is the greatest fuel!
Also finally, I need to thank the family and friends who have rallied around me in the darkest time of my life. Who literally picked me up, fed me, showered me, looked after my Tommy when I couldn’t and understood when I needed to be a puddle for the day. I am eternally grateful and it just reinforced how unbelievably lucky I am. Thank you!!!